Alan Titchmarsh was wrong. AMD Garden.

Alan Titchmarsh was so wrong with vast amount of white both for the fencing and the wide marble-like paths with the added insult of topiary!

We give you Gorgeous Gardens for AMD people

The Key Components are probably:

AMD garden

  • Colour Contrasts are crucial.
  • Green is restful for the eyes.
  • White is great with green plants.
  • Yellow is bright and cheery.
  • Bright Red is good mixed with white.
  • Blue is good in vast banks , eg bluebells.
  • No pink (looks brown or dead) no brown (it is dead or dying,) no purple (as it looks like brown or black).
  • No mixed colours in one bloom as they blend into a mess or pink or brown.

So some suggestions and ideas are therefore are:

  • Hedges or shaped bushes of Forsythia or Hypericum (fences painted pale blue give a superb contrast ) In winter the sweet smelling shrubs. I also use Bay trees and Rosemary.
  • A Yellow bed, with polyanthus, daffodils, yellow tulips, yellow azalea, yellow dahlias, yellow gladioli, yellow chrysanthemums.
  • A Red and white bed: red tulips, Busa Lilies, roses, geraniums, peonies, dahlias, chrysanthemums.
  • An Orange bed: French Marigolds, orange osteospernums,.
  • A White bed, snowdrops, osteospernums, white flocks, white roses, white lilies, white dahlias, white chrysanthemums,
  • Kitchen garden of plants for touch or smell, eg sage, rosemary, mint, thyme, parsley, dwarf french beans, beetroot, leeks, onion sets (with Petunias), chives, garlic, lavender plus Tumbling Toms (some need a raised bed) and also night-scented stocks.
  • Wherever possible scented climbers,  like jasmine, honeysuckle, clematis, sweet peas,.
  • Indoor plants eg Greek Basil and Basil.

AMD progress 2018

Well it`s been a full year.

Our AMD support Group in Shoreham is running and now has about fifteen members.

Five years after joining Sound Tennis some of us are now playing outdoors at the Sussex County LTC and using normal yellow balls on normal tennis courts.

With my wife we are still really enjoying our allotment actively running it throughout the year. We have leeks, sprouts and purple sprouting broccoli growing well.

I have noticed a gradual move to primary colours with good contrasts with green.

We enjoy the large print Scrabble.

I`m pleased to say that along the routes I use that the paths all not clear of overhanging branches, so its easy to make up my target  step goal particularly with watering the allotment.

Finally I have recently joined Sussex Sailability and taken up sailing again; an exciting physical and mental challenge as I relearn how to make the yacht go faster so that we can win races!

(For new readers, I am Registered blind as I have total loss of central vision and this coupled with Wet AMD in my left eye. It all started about eight or nine years ago)

It would appear that we have 65000 cells normally in use in each eye but only 6500 for peripheral vision. Wit two eyes combined this arithmetically means that we only have ONE per cent of our original vision.

As tine goes on I find I am more prepared to do things that I thought were impossible.

AMD update September 2017

I have decided that I stay positive, proactive and happy, everything else is looked after by my patron saint “San Fairy Anne”

So I try to be sociable, I try to help people at the AMD support group, I do speaking engagements for the macular Society.

I play tennis or rather I try to play tennis because it’s sociable it keeps me fit and because it forces me to train my eyes to follow the ball accurately. This has been dramatic in helping me get the most out of my eyes.

My wife and I love our allotment a we love being with our family..

I also go for walks out of the Downs and walks along the beach. I go to my favourite restaurants and cafes.

My right-hand man in achieving all these things is my smartphone. It’s a moto X from Motorola and it runs the best version of Android I’ve seen yet.

The latest version has larger text which is adopted by all the apps on the system and phenomenally it now has text to speech.

I love music and have a wide selection all on my smartphone and that collection is available to my hearing aids through Bluetooth connection as is my use of the TV. As I said phenomenal.

 

Oh yes by the way I’ve just had my 19th injection for wet AMD. Wonderful. It’s like opening the curtain.

 

 

AMD Support – YES WE CAN

Yes We Can

 

This a long term programme of ideas.

AMD Support Group meets 2nd Tuesday of each month, Shoreham Centre.

Help me card.”

Get Disabled Bus Pass, with carer.

 

Train peripheral vision to do all your seeing whether reading or getting about or watching the screen

Take B12 plus Lutein to support your macula.

 

Join 4Sight walks,

Attend Macular Society Meet the Doctors sessions

Join Southwick Slow Tennis Mon 10.30, Tues and Fri at 14.00 at Sussex County LTC, Kingston Lane.

Join Sailability for the disabled, Sussex Yacht Club.

 

Join 4Sight

Join Macular Society

Join RNIB (FOC)

 

Join IT Support Groups>:

  • 4Sight 3rd Wednesday of each month for members and carers

  • IT > Fri am Southwick Community Church

  • IT > Mon am Shoreham centre

  • AMD IT Support Group, 4th Tues each month

Get a Smartphone and link with Chrome Cast to TV.

  • Link to Amazon, Google News, Gmail, Diary

  • Set up INote for making notes

  • Link with local library for free audio books

  • Get an on-line newspaper

AND don’t forget special prices at cinemas (Komedia and Connaught) and theatres for –

  • Musicals and plays eg RSC, National Theatre

  • ROH for Opera and ballet

  • Glyndebourne,

  • Bolshoi Ballet,

  • Contemporary dance,

  • Films with AD at the Ropetackle & Connaught

Ideas to make your life easier:

  • Orange Tape (4Sight, RNIB)

  • Coloured stickers (WH Smiths)

  • Yellow labels (eBay)

  • Yellow lenses for improved clarity

  • Peaked hat or cap to reduce UV light

  • Telescopic white stick

  • Waterproof walking shoes (Hotters?)

  • Dark framed glasses

  • Mugs with white inside

  • Only drink red wine!

 

YES, We Can.

AMD support – Got poor sight? Join us.

 

Got Poor Sight ?

 

We know Reading is difficult.

We know crossing the road is difficult.

We know even just enjoying life is difficult.

 

So join us and learn how

to get the best out of life.

 

 

With Shoreham Macular Support Group

 

 

2nd Tuesday each month

10.00 – 11.30am

at the Shoreham Centre

Adur and Worthing Disability and Access working Group.Notes 2.

Topics: Next time:

  1. England v EU: dragging us down to their standards(?), the maximum width of a path, clear of  hedges, now seems to be 1.2m, “though vegetation may have to be cleared frequently.”                   This may be fine for “one powered wheelchair” but visually impaired people work from a wall not from the hedge and need the whole path width.
  2. New members to be invited specifically the Police 
  3. Entrance to LiDL has zebra stripes across the entrance, can we have the same across entrance to Co-op and Dunelm in Ham Road , Southlands Hospital in Upper Shoreham Road,  Tesco and Next car parks at Holmbush, and the new Shell garage on A259 [Community Service project?]
  4. Refuges at road junctions along Upper Shoreham road 12, 17, 21 paces wide,  and at Buckingham Road entrance and exit and Mill Lane.
  5. System for helping people get Disability bus pass,  Gary arranging for Ang… to contact me to sort out the problem. The disability bus pass is brilliant as it extends the day by a couple of hours.
  6. Access on Public footpath over Shoreham lock gates to Southwick beach, now that the official  cycle route uses this footpath. For the time being signs saying “Cyclists please let pedestrians go first”:
  7. WSCC Beautiful Sussex Project, does the proposed ed crossing over the A283 for the South Downs Way include a refuge? There is also a need for some help where the Downs Link Path crosses the A283 towards Bramber.

Shoreham Sound Tennis, SCLTC

I’m visually impaired and I play tennis at Sussex County Lawn Tennis Club in Kingston Land, Southwick (Shoreham.) We actually play Sound Tennis and welcome others to come and try it

Come and join us. We have a trained coach and volunteers to help.

We’re there most Tuesdays from half past two until half past four. I also play there whenever I like and am looking forward to the warmer evenings as well

Everyone is very friendly and its a lovely green oasis.

Soundball Tennis at Shoreham is special

Soundball Tennis at Shoreham is special.

The normal arrangements are that it is an indoor sport, whereas we can enjoy it as an outdoor sport with fresh air, none of the noise associated with sports halls (squeaking shoes, screams from Badminton players, rock music from the climbers on the indoor walls, etc.)

We have found and initially we prefer the slightly firmer BUZZBALLS which re made in England as their flight is truer than the normal Japanese balls. We have since progressed via red balls, orange sot andgreen spot balls to the normal yellows.

The company making them work with 23″ rackets so so do we. We have found that the Japanese balls do not survive heavy usage particularly with the longer 25″ and 27″ rackets. For yellow balls we now use 27″ rackets.

We use the ‘orange ball’ court because it’s appropriate for the shorter rackets. Nowadays we use a full size court.  Net height is set at 80cm.

For a video of the indoor version look at Metro, indoor Soundball

I set thus up because I wanted to be able to play at a court I could walk to from home and enjoy peace and quiet. By joining Sussex County Lawn Tennis Club as a member I could enjoy the club facilities at any time. Thank you.

Today we have two visually impaired players and three helpers. Most of us were starting tennis for the first time and nobody could see any of our mistakes.!

Two years on and our effective vision is much better and we are all fitter  and healthier.

Come and join us.

AMD & Cliff’s Action Plan for AMD

 

Well seven months later, 11th January 2197 update.

My wet AMD hid the attack by Dry AMD in my left eye. “Both of your eyes have extensive damage from DRYy AMD so we don’t see any benefit of continuing the injections in your left eye.”

I know the extra sight I get after an injection so this proposal appalled me.

I have added a special pocket to many pairs of trousers so as to carry my telescopic white stick all the time just actually using it for the shortest times.

SO WHAT.  I hauled out my boots and went for an eleven mile walk over the South Downs today, just to prove I can

My effective vision is as good as it has ever been.

………………………………………………………………………………………………

September 20116 Update:

I’ve had AMD for six to seven years mow. I had early onset Dry AMD in my right eye which later deteriorated to the left eye and with Wet AMD. There have been many ups and downs and I’m pleased to say that my effective vision is better today than at any time since diagnosis.

Since April I have been taking Lipitor at a gradually increasing dosage from 20mg per day to 80 today (September). We have no objective measurements yet and possibly not until January 2017. I bought the Lipitor from pharmacies in Portugal while visiting.

I have stopped carrying a white cane.

…………………………………………………………………………………

August 2014 Cliff’s personal action plan, a  schematic.

develop your own personal plan

1.  Take Food Supplements
Drosen  is dead cells not washed away, so I take Lutein  and Zeaxanthin with the zinc supplement and  vitamin b12. I take 80mg, rather than 10mg because one always lives in hope.
2.  Look  Beyond.
I’m using my brain to instruct my eyes to “look beyond” or round the splodge to get my peripheral vision looking ahead of me.
3. Go Walking.
I go walking in parks or the countryside as its green – relaxing and good for the eyes and the soul. Target, 10,000 paces a day.  This sounds a lot but this is only an hour and a half.

4. Go Further and Even Further.
To move on I need to try to go further in every area of my life, all the time, always rebuilding my self-confidence.

5. Get Visual Impairment certificate.
Gives you reduced prices for your carer and may be some government “Benefits”.

6. Always say YES.
It’s scary but the fastest way to re-develop myself.

7. Get a Tablet
Start with this technology NOW and learn to use it fast as it’s a life-saver, as it keeps you in touch with the world. Without being in touch with the world, quality of life can disappear down the drain.

8. Get and Help Another VIP
A problem shared is a problem halved.

9.  Build up an Exercise Regime
I do Tai Chi and indoor tennis. I run a productive allotment.

LUTEIN – The Macular Society’s Comments

These are exciting times for research.  Promising new drugs are in development, important genetic discoveries are being made and we’ve seen the first safety trials of stem cells in the human eye.

 

A large study, the Age-Related Eye Disease Study 2 (AREDS 2) suggests that a high intake of lutein can reduce the risk of developing advanced AMD. The Aston researchers concluded: “For an informed population, many AMD participants were under-consuming nutrients considered to be useful for their condition.  Participants without AMD were more likely to reach recommended daily allowance values”.

[ Publsher’s Comment ; The AREDs 1 study is in fact more important.]

 

Lutein and zeaxanthin, key constituents of macular pigment, have been found in high levels in the retinal rods.  This suggests that macular pigment could play a significant role in keeping the retinal rods healthy and maintaining how well our eyes are able to adapt to the dark

 

Consider a nutritional supplement if you cannot be sure of getting high levels of antioxidants in your diet.  There is some evidence that a specific formula of antioxidants and zinc tested in the second Age-Related Eye Disease trial  (AREDS 2) can slow down the progression of AMD in some groups of people.  No supplement has been shown to cure AMD.  You should always talk to your ophthalmologist or optometrist before taking supplements, as they can interact with prescriptive medications.

 

The Macular Society has information on all aspects of living with macular conditions.  We also have local support groups and a training programme to help people learn to use their peripheral vision more effectively (called “skills for seeing”).  We have a professional, confidential telephone counselling service, a befriending service and a team of “buddies” who can provide reassurance on injections and visual hallucinations caused by Charles Bonnet Syndrome

 

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