- Speaker Simon. Not only do we inherit blue eyes, we have all survived the Black Death. It`s the same gene (Complement Factor H.) 30% of the population have one copy. They are 3 times more likely to have AMD. If you ave 2 copies you are 5 times more likely. There are also links to Lymes Disease.
- Speaker David Crab of the Crab Lab is trying to accurately measure the extent of vision loss.
- Speaker Bethany, a researcher into the sociology and effectiveness of support groups. Her preliminary findings are as follows:
– Knowledge and information
– Social getting together
– Sharing experiences
– Hints and tips
– Local pressure group.
Speaker Cathy Yelp, CEO Macular Society spoke about the New Ambition, which is to raise the profile of the charity with the objective of investing more into research.
We are unlikely to get a cure in time for ourselves so fundraising is for the next generations. All new funds to go for research.
Major research projects funded by the Society include Gene therapy; stem cells; delivery system for drops; 16 smaller research projects.
Increasing awareness, get more supporter, more members, families, friends of families and friends of friends, and lots more.
A very substantial task, we will all have to help.
As Cathy said the starting point is raising awareness.
If you want me to talk to your group, please contact me and we can make the necessary to arrange a visit.
If you think the Macular Society ar doing a good job please donate here.