AMD update September 2017

I have decided that I stay positive, proactive and happy, everything else is looked after by my patron saint “San Fairy Anne”

So I try to be sociable, I try to help people at the AMD support group, I do speaking engagements for the macular Society.

I play tennis or rather I try to play tennis because it’s sociable it keeps me fit and because it forces me to train my eyes to follow the ball accurately. This has been dramatic in helping me get the most out of my eyes.

My wife and I love our allotment a we love being with our family..

I also go for walks out of the Downs and walks along the beach. I go to my favourite restaurants and cafes.

My right-hand man in achieving all these things is my smartphone. It’s a moto X from Motorola and it runs the best version of Android I’ve seen yet.

The latest version has larger text which is adopted by all the apps on the system and phenomenally it now has text to speech.

I love music and have a wide selection all on my smartphone and that collection is available to my hearing aids through Bluetooth connection as is my use of the TV. As I said phenomenal.

 

Oh yes by the way I’ve just had my 19th injection for wet AMD. Wonderful. It’s like opening the curtain.

 

 

Adur and Worthing Disability and Access working Group.Notes 2.

Topics: Next time:

  1. England v EU: dragging us down to their standards(?), the maximum width of a path, clear of  hedges, now seems to be 1.2m, “though vegetation may have to be cleared frequently.”                   This may be fine for “one powered wheelchair” but visually impaired people work from a wall not from the hedge and need the whole path width.
  2. New members to be invited specifically the Police 
  3. Entrance to LiDL has zebra stripes across the entrance, can we have the same across entrance to Co-op and Dunelm in Ham Road , Southlands Hospital in Upper Shoreham Road,  Tesco and Next car parks at Holmbush, and the new Shell garage on A259 [Community Service project?]
  4. Refuges at road junctions along Upper Shoreham road 12, 17, 21 paces wide,  and at Buckingham Road entrance and exit and Mill Lane.
  5. System for helping people get Disability bus pass,  Gary arranging for Ang… to contact me to sort out the problem. The disability bus pass is brilliant as it extends the day by a couple of hours.
  6. Access on Public footpath over Shoreham lock gates to Southwick beach, now that the official  cycle route uses this footpath. For the time being signs saying “Cyclists please let pedestrians go first”:
  7. WSCC Beautiful Sussex Project, does the proposed ed crossing over the A283 for the South Downs Way include a refuge? There is also a need for some help where the Downs Link Path crosses the A283 towards Bramber.

Shoreham Sound Tennis, SCLTC

I’m visually impaired and I play tennis at Sussex County Lawn Tennis Club in Kingston Land, Southwick (Shoreham.) We actually play Sound Tennis and welcome others to come and try it

Come and join us. We have a trained coach and volunteers to help.

We’re there most Tuesdays from half past two until half past four. I also play there whenever I like and am looking forward to the warmer evenings as well

Everyone is very friendly and its a lovely green oasis.

Soundball Tennis at Shoreham is special

Soundball Tennis at Shoreham is special.

The normal arrangements are that it is an indoor sport, whereas we can enjoy it as an outdoor sport with fresh air, none of the noise associated with sports halls (squeaking shoes, screams from Badminton players, rock music from the climbers on the indoor walls, etc.)

We have found and initially we prefer the slightly firmer BUZZBALLS which re made in England as their flight is truer than the normal Japanese balls. We have since progressed via red balls, orange sot andgreen spot balls to the normal yellows.

The company making them work with 23″ rackets so so do we. We have found that the Japanese balls do not survive heavy usage particularly with the longer 25″ and 27″ rackets. For yellow balls we now use 27″ rackets.

We use the ‘orange ball’ court because it’s appropriate for the shorter rackets. Nowadays we use a full size court.  Net height is set at 80cm.

For a video of the indoor version look at Metro, indoor Soundball

I set thus up because I wanted to be able to play at a court I could walk to from home and enjoy peace and quiet. By joining Sussex County Lawn Tennis Club as a member I could enjoy the club facilities at any time. Thank you.

Today we have two visually impaired players and three helpers. Most of us were starting tennis for the first time and nobody could see any of our mistakes.!

Two years on and our effective vision is much better and we are all fitter  and healthier.

Come and join us.

Building a Better Britain

Building a Better Britain

Economists and politicians need to realise that the UK people have changed. They are now the highest educated people we have ever had. They are the ones who have noticed that they are not getting a fair deal and have thrown the cuckoos out of the nest. They want a new deal.

Similarly they are the people driving the new sector of the economy the ‘Knowledge Sector’, embracing AI, Robotics, nano-technologies, the Internet of Things, Gameification, new materials and new knowledge from every source multiplied by our innate capability to innovate that is to turn new knowledge into real life and to deploy and implement them them effectively.

The economy is no longer driven by the land owners or the factory owners. The Services sector still exists covering retail, tourism, entertainment, hospitality and private rented housing.

This new Britain needs a new, revitalised ethos and direction looking after our nation.

 

Three key elements, namely:

1. Congratulate the Voters

  • Just as the Scots, Welsh and Ireland have national days so should England, so rename the Early Spring Bank Holiday as “England Day” and change the date to 23rd April
  • Announce a new national day for everyone “Independence Day” June 23rd each year
  • To solve the housing shortfall (a million homes) and to create half a million new jobs announce EDZ Enterprise Development Zones available for any ineffectively used land in city , town and village centres utilising existing public transport facilities for example bus and train stations and any available car-parks.

2.Create a larger executive Better Britain Team,   create a larger executive Better Britain Team, say 5,00 people recruited from the professions and industry amongst other items:

  1. To establish a level playing field solve the problem of  the “Haves” versus the “Have-nots”, the same problem the Aborigines and the North American Indians all dispossessed of their land by invaders or armed gangs.
  2. To give the maximum freedom to wealth creators,eliminate transaction taxes e.g. Stamp Duty, and Inheritance and Capital Gains taxes
  3. To reward and look after local creators rliminate Business Rates and reduce Corporation Tax to one per cent for those companies not subject to IPR charges, royalties, head office management charges or other devices designed to export profits to an external jurisdiction-
  4. To simplify the Tax Law and release people to more constructive roles, eliminate Airport Taxes and other minor taxes
  5. To improve productivity and quality of service instate trading opportunities in every area that can be considered a monopoly, including Train Operators’ contracts, local government (particularly as they are no longer audited accounts)  Health Services, Water companies, thr\copper cable’ twisted pair monopoly abused by the current owners
  6. To reduce the feeling of inequality open up Quangos so that they are run by unpaid volunteers, to be rewarded by a new nomenclaturte  for example VSOP (volunteer specialist)
  7. To eliminate the preference given to political appointees and civil servants to reorganise the House of Lords, and to remove hereditary ranks and Lords Spiritual and substantially reduce their numbers
  8. To recognise the importance getting people to their work efficiently to sort out a new method of public transport e.g. bus convoys with alterations to priorities on motorways and dual carriageways
  9. To ensure that Honours are greeted fairly by the nation as a whole to change the Honours rules so that the media cannot use the honorific if the individual is not ordinarily resident and domiciled in the UK
  10. To properly recognise the extraordinary contribution made by our colleagues who work overseas, cahnge the income tax laws so that their rewards are free of UK income and corporate taxes
  11. To give voters control of their local council by revoking the current payments to councillors (as this makes them dependent on their income, ), by legislating that every council produces and publish them proper report and accounts (just as public companies are required to do)
  12. Now let’s get everyone in Britain speaking good english and enjoying our culture, ethos and freedoms

 

3.Create a separate EU exit team to handle the divorce, recognising that it will be virtually impossible to negotiate with twenty seven countries. There seems to be a determined effort by too many people to make these negotiations very difficult or impossible or impossibly protracted.

In these circumstances our probable starting point is to trigger Article 50 and then to announce that we will consider any agreed proposal from the EU agreed by thee twenty seven member.

In the event of this being impossible then we will leave in twenty four months; that we now have to accept the possibility of being accused of  aiding and abetting corruption by transferring monies to organisations without audited accounts; ourt payments would any way reduce progressively to NlL by the end of the twenty four months.

In these circumstances the UK will negotiate Trade Agreements with whoever they want to, ready for implementation on the first day of freedom but no later than 23rd June 2019.

Adur Disrtrict Council Disability and Access group – my notes

Topics: Next time:

– Nick’s role as Advisor, and really the purpose of the group and it’s terms off reference

– New members to be invited specifically the Police

– Pedestrian safety at island at entrance to ‘NEXT’ car park.

– Refuges at road junctions along Old Shoreham road 9, 12, 17, 21 paces wide, also at Buckingham Road entrance and exit

– Pavement Closed – use other pavement. – Nick I think said I had to get in touch with the Highways Agency, [temporary path now barricaded. Brilliant.]

– Disability bus pass, ROVI knows certified sight loss so the ‘Pass’ people shouldn’t need any further proof. Gary arranging for Ang… to contact me to sort outy the problem

– Footpath / bridle path path North from Holmbush , covered in horse dung and then a quagmire.

– Overgrown hedges on Old Shoreham Road and Kingston Lane.

– Access on Public footpath over Shoreham lock gates to Southwick beach,

–  Who pays Chartwell? Who in WSCC liaises with Chartwell?

 

Previous meetings:

 – Talking BUS STOP now talking again. Brilliant. [“Please accept this slight delay as to save power the display is in sleep mode…” 1 minute and < three minutes. Gary looking into it]. Now working perfectly. Thank you.

– BARLEY MaCcroawbsss V CoRiMe FFishsave
Duty of Care to a known coeliac given a non-gluten free meal at School (told by dinner staff it was fine for him, even when he disagreed.) Now picture a child writhing with pain for twenty hours. PLUS two weeks later Dumpling Incident. The problem is the length of the chain, How can I help? Nck emailib me about Penny… CJ to contact Coliac Society. Chartwells.Question Delegated or deserted?

–  Compliments to Planning Officers at Shoreham Society meeting
– Glass panels on footbridge
– Compliments for Southlands Green,
– Compliments of Downs Link path new surface,
– Wheelchair compliant allotment now available at Williams Road allotments
– Access leaflet (30th September 2016)
– Local information and facilities screens (30th September 2016)
– Circle Network, WSCC time bank, sounds good. (30th Septemb2016)
– Operation Crackdown, progress to date? (28th July 2016)
– Bus Times. OAPs expected to be in bed by 11pm. (28th July 2016)
– Compliments for new pavement at east end of Ham Road.
– Hanging baskets at head height in Southwick Square pretty but just the wrong height. Suggested an ‘A’ board underneath.(30th September 2016)
– Compliments for clearing A boards in High Street.
– Timing of traffic lights, eight seconds to cross the road. (30th September 2015)
– Asked for Twigglers on all replacement traffic light units. (30th September 2016)
10.30. am Friday 29 th July 2016

Agenda

1. Housekeeping, Welcome and introductions
2. Apologies &amp; AOB items (please advise at start)
3. Minutes of the last meeting (no longer provided – attendees notes only)
4. Matters arising
i. Dial-a- Ride and Community Transport
ii. Disabled Go
5. Planning
6. Work Plan
7. Any other business (as advised at start)
8. Outcomes &amp; the future of the group
9. Date, time and venue next meeting.
Friday 30 th Sept 2016, 10.30, max 2 hours, Room 1, Shoreham Centre
Format to remain the last Friday of every odd month (1,3,5,7,9,11)
/home/cliff/Cliff’s pictures/Cliff’s Choicest/13973 Many Merry Marigolds Cliff Jenkins.jpg

My notes for talk about AMD – Macular

AMD Facts (source Macular Society):

  • 51% of over 65s have the start of AMD

  • 15% of all over 80s have advanced AMD

  • time from initial symptoms to severe is usually between 6 and 12 months

AMD causes progressive deterioration of sight:

  • no driving

  • no reading (newspapers, TV programmes, books, signs,)

  • no writing

  • fewer smiles, no face recognition. No eye contact

  • loss of colour definition, and clarity; need more light,

  • no depth perception

AMD Pre-emptive defence:

  • Get OCT scan from Peter Marson in Church Road Hove
  • Take Lutein

  • Get fit, you’ll be walking a lot!)

  • Get a good smartphone

  • Join Shoreham AMD Support Group at The Shoreham Centre

  • Give me a call, Cliff on 07582 902922

  • Use your sense of humour, plenty of obstinacy, and a pair of waterproof shoes

Cliff Jenkins, February 2016

Shoreham Soundball Tennis

Join us at
Shoreham Soundball Tennis

Tennis for Visually Impaired people

Visually Impaired (VI) people of all ages, abilities and circumstances are made very welcome. We provide the opportunity to to learn and to play Soundball Tennis. We provide both the equipment and the training.

So we’re looking for VI people plus sighted volunteer players and umpires, coaching is provided for everyone as are Rackets and balls.

Come and See for yourself on Mondays at 5.30 – 7.30. ts, FREE taster session then £10 per session or £20 per month or £190 per year. FREE facilities for volunteers

 

Great Fun with Improved fitness, agility, effective vision, weight-loss, friendship, new experiences, and fresh air.
Contact: Cliff Jenkins 07582 902 922

A Not-for-profit group run
in conjunction with Sussex County Lawn Tennis Club
Kingston Lane, Southwick, West Sussex, BN42 4DJ

What Music means for me

Mmmm!,So the Open University and Royal College of Music have launched the Lstening Experiences Database to try to understand the relationship between composers, performers and listeners.. I think that is much too facile. Take me for example….

NOW Listening to Scott Joplin piano rags. Three styles… The Stuart and Bradley James, the man himself and the music for the ballet Suite Elite Syncopations. All started by buying sheet music at a church Jumble Sale. Wonderful.

A crazy mixture of music experiences.

Now its WOAD...very modern. Powerful guitars.

1170 tracks on my tablet, 2200 on my main computer, most recently from Amazon and Spotify. Prior to that vinyl transfers to dpigital plus CDs.

Started with singing church music then learning to play the piano plus Scout campfires and Gang Shows plus the school choir (Walpurgis Night)

Winning piano competition …. Splfeggio. Marriage of Figaro TV broadcast from Big School.

My sudden interest inreacting to the ideaa of the database was caused by a brilliant concert. Berlin Philharmonic / Simon Rattle/ Prokofiev Piano Concerto No.3 / Lang Lang. Four. Geniuses. Wonderful. The camera work was superb.
NOW listening to it (Prokofiev) and the studio sound is even better.

Also over the last three years ballet from the shoi…..Soshtakovich,Tchaikovsky, Katchaachurian, Stravinskiy, Fuare, Mikus, Delibes, and also Brubeck Linchbury

Then here is West Side Story, My Fair Lady, Cabaret, Mamma Mia! With each of these I became emotionally engaged.

Now Its Raining Men

TIMELINE

1947 Wind up gramophone with Puccini Madame Butterfly, One Fine Day. Then Sunday School and hymn singing starts. AND Frere Jacques, Sur le pant D’Avignon,
Allouette, gentile Allouette,
1948 Started to learn to play the piano, Schubert Mozart Chopin, Bach,
1952 Watched Mikado and other G&S a other amateur operetta’s
1953 Coronation marching bands plus later Military Tattoos and also Colliery Brass Bands,… The Post Horn Ga!lop.
1956 Stopped learning piano. Saw Ruxolf Nureyev dancing Le Corsaire.
1957 Mi!itary band for Queen Sout marchpast at Windsor Castle; Carol singing; Dancing g Rock and Roll,skip Jive; Country Dancing
1858, Week of Operas at the Alec, standing at the back.
1959 Abide with me. family funerals.
1966 Jesu Joy of Man’s Desiring at our wedding; Vacationes enan Mallorca… Hava Nagula
1968 Rumania Circocilia and folk dancing
1976 Songs sung in Mandarin, extraordinary, so melifulous
1980 Singing the Marseillaise as we sail into a French harbours. Yacht club Dinner Dances for jive, rock and somtimes even a quick step, waltz.
2010 Found ballet again.Bright Stream, Spartacus, Le Corsaire, Concerto (BRB),
2014 Concert Simon Rartle , Lang Lang, Prokofiev Piano Concerto 3 with Berliner Philharmonic. Bought the down!oad from Anazon.

Stopped Spotify subscription.

Now Spirit in the Sky

Star Wars, Gladiator. Happy Feet animation ballet, Fantasia animation ballet.

Then there is exquisite playing eg Nigel Kennedy, Vanessa Mae, Kyung Wha Chung, Julian Lloyd Webber, Rachmaninov, Bernstein, Ray Charles, Elvis Presley,

And La petite Piaf, Marlene Dietrich, Esther Ofarim, The Carpenters, neil Diamond,

So for me music comes in all shapes and sizes. There are composers and performers and listeners. There are a!so extemporisers ( both jazz and church organ introits) and amateur performers, including karaoke, plus active, participating listenrs eg dancers,skaters and then sedentary listeners. People wander across a few, many or all categories.

My preference is now the combination of people interpreting music in all forms whether skating or stage dancing or ballet or The Prottopopovs, Torville and Dean, Kenneth Macmillan, Frederick Ashton, even the choreographers on Strictly Dancing.

For me for the future I need to crack, the problem 9f sheet music for my digital piano and / or to learn the auto-backing in the CDP 220 and create my own music.

NOW listening to Liebestraum by Liszt

AND the good news is tioday’s break-through because rather than waiting to try to get Musescore.org on my (Ubuntu) computer I decided to adopt a more classic approach by getting a music stand and drilling a hole through my desk so tht the music is directly in front of my eyes. I mmediately rang the RNIB muusic Team to request a copy of large print score for Brahms wltz in A Flat. Let’s see how I get on.

AMD -Hints and tips for coping

Hints and tips, strategies for coping with AMD or other Visual Impairmentg

Hold your left thumbnail straight down and use this as a rest of when slicing onions etc. And similar for sawing !ogs though using your knuckle instead of your nail.

Throw away mugs with dark inside as it needs to contrast with the liquid, coffee etc

Always a contrast, brown eggs not white. For growing or cut flowers lways look at contrast. Green with yellow. Purple with white. Green with white. Cream with red.
Yellow with black.

Boots I reckon are a must, because of rough walking … kerbs and bad pavements. Clothing for any weather is also critical.
Work out your safest route, starting with a short walk, gradually working further afield.

Learnt this week, gently tap a nail in, then spot the head accurately and let the hammer swing on to it

Learn to use a tablet or Smartphone. Future-proof yourself.eg Moto G £ 153.

Large print picture childrens books, for reading to grandchildren

AND then there’s the Nexus. for I calendar, news, weather, books, notes, email, music, reminders, camera, magnifier, crossword puzzles, web site favorites, to do list, phone no’s, pictures and photos.

Always choose colourful food, not mashed pots, cauliflower, poached plaice. . Choose squash, roast pots, peas, carrots, meat etc

Get certificate for Visual Impairment / bus pass. MUST

Use tablet for audible alams / alerts

Monocular, for reading bus,plane and train destination / departure boards.

Only drink RED wine and always get screw top bottles.

……………………………….

If this article has been of help to you, I’d love you to say thanks by making a small donation to JustGiving for the Macular Society. All the monies route directly to the Macular Society, particularly for research into a cure.
Thank you very much,
Cliff.

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