Just Giving – Cliff’s Blind Walk

Just Giving For the macula Society

I’m asking you to give to the macula Society because they help people come to terms with the aprtial or complete loss of their sight, they provide local support groups to work with them and to help them.

The society staff are supplemented by fourteen hundred volunteers.

In my personal opinion their most important task is sponsoring research into potential cures.

It appears that the best probabaility lies with stem cell research. There are several teams working on the problem One difficulty they are tackling is inserting the new cells in the right place and in doing it at a cost people can afford, whilst others are trying to grow the new cells in quantity.

Just Giving for the Macula Society

I couldn’t ask you to sponsor my recent climbing in Snowdonia because it could have meant putting people at risk so I ask you to sponsor me on a simple six mile walk but wearing the dreadful simulation glasses. I have spare ones if you want to join me!

Just Giving For the macula Society

The walk is planned for 10.30am on Saturday 19th october 2013 starting at Carats Cafe east of Shoreham Harbour entrance proceeding along the seafront along past Hove lagoon to Brighton Pier and then along Marine Parade to finish at Brighton Eye Hospital.

With your supprot we can solve this problem and find a cure.

Please help, thank you.
Just Giving

Age Related Macular Degeneration

Updated 28th August 2013 Still battling on. Suffered a couple of setbacks as the doctos gave me some rablets for High Blood Pressure and they may have been too successful as my eyes suffered. Nine months on my eyes may be recovering. Still I thought you might like this link to hear what an eyecare professional comment on the Macular society.

I also need to tell you taht I’m now taking 80mg Lutein each day and whether it’s actually working or whether it’s told my brain that this is a serious problem and needs to be dealt with i don’t know but it’s not as bad as when I initially had the HBP pills damage.

By the way my left eye developed Wet AMD.

Updated 02022011 Lutein. I read somewhere about positive effects of Lutein. The test cases used 20-39mg per day and got positive results. I’m fairly well built and I need to get a result so I’m taking 40mg per day. I need to clear my eyes fo the gunk if I can. It seems to be working as I’m back to reading the paper, in the right light of course and it’s easier to use the computer and the Kindle. I’m scheduled for another eye test in early July. I’ll report how we get on.

Posted 11012011 Age-related Macular Degeneration.

I found I was suffering from dry AMD about four months ago. I also have a slight void in the macular muscle which is distorting my vision.

My optician, well his lady assistant actually, picked it up and arranged a fast appointment with my optician / ophthalmologist, because he has an OCT (Optical coherence tomography) machine. Yes, there was the build-up of dry AMD. He arranged an appointment with the local eye hospital but the specialists there couldn’t see any build-up and sent me forth saying there was nothing there “I can’t see anything wrong.”

I assume that’s why they also have an OCT machine, because it can ‘see’ better than the human eye. However their machine is fairly old and can only take a photograph of three slices across the eye whereas my optician’s is the latest and takes 127 photographs – forty times more detailed.

Suffice to say I got a new appointment at a different eye hospital, with the same result even though their machine was slightly newer, but it only takes a photograph of seven slices across the eye, so my optician’s is still nearly twenty times more detailed.

I’ve told my optician that ‘in the land of the blind, the one-eyed is king’ and he’s the king, also that he has already seen more in his patients eyes than the ‘experts’ have done.

As far as treatment is concerned there’ is no treatment yet for Dry AMD, though possibly lutein may help. I’m taking 30mg per day in the hope that it’ll do some good. Also I’m hoping stem cell treatment may be possible at some stage.

Meantime I’ve turned down the brightness of my computer screen; bought a Kindle; rebalanced how much time I allocate to the various tasks I ask my eyes to do and I’ve bought a Blu-ray player.

But it’s not looking good.

No driving at night; no clear view of a person’s face; no recognising people across a room (except by listening); no newspapers;  no lip-reading;

As I said, it’s not looking good.

Cliff

DRY AMD – Winning The battle with AMD?

DRY AMD – Winning The BATTLE with AMD?

I was furious that I had ‘lost’ my sight, with early 0n-set AMD.
DRY AMD – a catastrophe as AMD means I felt unsafe to drive, and unable to read and to write; …. and to cross the road, read destination boards, and worst of all to be unable to recognise faces

HoweverI have immense confidence in the power of the brain and I determined to get the brain to set up new synapses between the eye and the vision part of the brain. It’s just like a muscle, it needs training, eexefrcise and rest.

So I:
– concentrated on my best eye to shift the grey blockage out iof the way, using a wardrobe door handle to look at and to practice on, every morning for ten minutes. Later I got my left eye to come together with it.

– started taking Lutein, lots of it as in the optical profession they all use it… and the American studies seem to augur well and with no side-effects

– also added VitaminB12 supplement as this might act as a catalyst for Lutein and my count for B12 was very low (181)

– bought a Nexus 7 to go with my Acer PC, because it has brilliant PPI (pixels per inch) 213 0f them. (Now 300 in the Nexus 10 and 320 in the Nexus 4.) I worked with this and it now means I can read the news from Google, DT and all (Plus lots of other things eg email, documents,books, music,)

– use lots of ‘shut-eye’ to rest my eyes, land lots of green from walks in the park and in he country to ease them

– continuously congratulated the brain for any and every improvement no matter how small

DRY AMD – Winning The BATTLE with AMD? NO, but now I can read, write, watch TV, and read a destination board.

Is it fully corrected? No, I’m still fighting the battle and I’m looking forward to stem cell replacement in five or ten years time.

Cliff

PS. I also have Wet AMD in my left eye and the Lucentis (treatment but not cure)works for me though the stab of a metal shard into the eyeball is painful!!

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