AMD progress 2018

Well it`s been a full year.

Our AMD support Group in Shoreham is running and now has about fifteen members.

Five years after joining Sound Tennis some of us are now playing outdoors at the Sussex County LTC and using normal yellow balls on normal tennis courts.

With my wife we are still really enjoying our allotment actively running it throughout the year. We have leeks, sprouts and purple sprouting broccoli growing well.

I have noticed a gradual move to primary colours with good contrasts with green.

We enjoy the large print Scrabble.

I`m pleased to say that along the routes I use that the paths all not clear of overhanging branches, so its easy to make up my target  step goal particularly with watering the allotment.

Finally I have recently joined Sussex Sailability and taken up sailing again; an exciting physical and mental challenge as I relearn how to make the yacht go faster so that we can win races!

(For new readers, I am Registered blind as I have total loss of central vision and this coupled with Wet AMD in my left eye. It all started about eight or nine years ago)

It would appear that we have 65000 cells normally in use in each eye but only 6500 for peripheral vision. Wit two eyes combined this arithmetically means that we only have ONE per cent of our original vision.

As tine goes on I find I am more prepared to do things that I thought were impossible.

Trying to clear footpaths in Shoreham By Sea

AWDAWG Minutes June 2nd

(Including adapted Considerate Parking Flyer)

(AWDAWG, Adur and Worthing Disability and Access Working Group)

Welcome to:

Jenny Anderson who represents Matters for the Deaf

Dave Simmons, District Councillor and WSCounty Coumcillor

Matters Arising:

None of the matters arising from the last meeting had been dealt with or addressed during the two months since March. The Councils` representatives need proper support.

Fortunately Dave Simmons will take on many of these actions in order to improve the situation.

  1. Disabled Go, common search terms do not work; and information on Worthing facilities are not shown. Action Gary

  2. Height Barriers across entrances to car parks are too low at 2.1m and need a higher 2.2m facility for larger disabled vehicles to enter. Action Dave.

  3. Pavements obstructed by parked vehicles on driveways or front gardens. “Considerate Parking” pdf received from Teresa, to “Share” with us. Two hundred copies requested. No response. Cliff screen scraped the `shared` text and created his own Considerate Parking flyer (see below). Dave volunteered to speak to police / Safer Roads project to discuss, particularly based on photos, for official letters to be sent to the registered users. Cliff to hold off using his flyer for now. Action Dave.

  4. Ropetackle Traffic Lights arrangements need to be improved. Action: Nick, Dave and Martin

  5. England v EU: dragging down to their standards(?),

Sort out paths being clear as property users` responsibility versus maximum path width 1.2 m, as WSCC refused to take any action if the path was / is clear for 1.2m. As hedges have now grown more this forces pedestrians and all other pavement users into the road or to face other difficulties. Action Dave

  1. Kingston Lane path half-blocked for 50metres opposite Shoreham Academy, forcing school children into the road. Path blocked by owners gardens spilling onto the path reducing width from 2m to 0.8 metres. (room for one person at a time.) Proposed for safety barriers to be installed urgently as the pathway is blocked.

    Also note, almost opposite, the Shoreham Academy hedge on the west side of Kingston Lane reduces the path to less than 1.0m. Possibly divert pavement users to use their exit road instead but would also need safety barriers.

    Action Dave.

  2. Pedestrian Traffic Lights at Holmbush south across Old Shoreham Foad have no sound signal. Plus overgrown hawthorn hedge on the pavemeny here Action Dave.

  3. Overgown Hedge on Mill Lane north of the bridge over A27 on the east side. Action Dave.

  4. Zebra stripes across Tesco and Next,Action: Nick to find out whose jurisdiction, whether County or District Council. Action Nick to ‘personally visit Managing Agents at Holmbush Centre.

  1. Refuges at road junctions along Upper Shoreham road 12, 17, 21 paces wide, and at Buckingham Road entrance and exit and Mill Lane. Action: Nick to investigate.

  2. WSCC Beautiful Sussex Project, does the proposed crossing over the A283 for the South Downs Way include a refuge? Action:Dave.

  3. Access on Public footpath over Shoreham lock gates to Southwick beach, now that the official cycle route uses this footpath the path should be 3m wide rather than 1m. Action: Gary to work with Shoreham Port Authority.

  4. System for helping people get Disability bus pass, Action: Gary unable to find out who is responsible, now complete review is being arranged.

  5. Cliff to illustrate Pavement Obstructions with photographs, also showing locations. Action: Gary to get a Chrome Cast for the TV screen, cost approx £50.

  6. External Communications, Cliff`s visit established that BBC Sussex need press releases.

The Bus pass issue is out of our hands. No further action required.

Considerate Parking

As described by Sussex Police

Illegally parked vehicles cost hundreds of thousands a year in damage to paving and grass verges, and cause serious problems for other motorists, blind, disabled / older people and parents with small children and buggies.

What is being asked?

  • That you park with consideration (not just for the paths, but for the resident’s house you park outside and for other road users)

  • That you consider the safety of your child having to negotiate a badly parked car? (How would it make YOU feel?)

  • Do not obstruct junctions, paths and entrances and do not park on School Zigzag marked areas.

Why is bad parking a problem?

Pavements are provided and constructed for pedestrian use. Vehicles parked

on pavements / junctions and Zigzag school markings are:

  1. A hazard to pedestrians, causing an obstruction, which may result in them having to step off the pavement and onto the highway, thus putting them in danger.

  • A hazard by restricting the width of a pavement, making it difficult for someone with a pushchair or wheelchair to pass safely – again this person may have to go into the highway to avoid the obstruction

  • Badly parked vehicles can obstruct the flow of traffic along roads and can increase the risk of injury to pedestrians and other road users.

How is this dealt with?

  • By fixed penalty notice (£30 fine) for obstruction of a path or a junction may be issued by a Parking Enforcement Officer or uniformed member of staff from Sussex Police.

  • By civil action or fine for damage from the local council

  • By a vehicle being removed at the owners cost if causing an obstruction to the highways and through flow of traffic

  • By simple words of advice given to the driver by a uniformed officer.

Roads around this area are being monitored.

AMD support – Got poor sight? Join us.

 

Got Poor Sight ?

 

We know Reading is difficult.

We know crossing the road is difficult.

We know even just enjoying life is difficult.

 

So join us and learn how

to get the best out of life.

 

 

With Shoreham Macular Support Group

 

 

2nd Tuesday each month

10.00 – 11.30am

at the Shoreham Centre

Shoreham Sound Tennis, SCLTC

I’m visually impaired and I play tennis at Sussex County Lawn Tennis Club in Kingston Land, Southwick (Shoreham.) We actually play Sound Tennis and welcome others to come and try it

Come and join us. We have a trained coach and volunteers to help.

We’re there most Tuesdays from half past two until half past four. I also play there whenever I like and am looking forward to the warmer evenings as well

Everyone is very friendly and its a lovely green oasis.

Soundball Tennis at Shoreham is special

Soundball Tennis at Shoreham is special.

The normal arrangements are that it is an indoor sport, whereas we can enjoy it as an outdoor sport with fresh air, none of the noise associated with sports halls (squeaking shoes, screams from Badminton players, rock music from the climbers on the indoor walls, etc.)

We have found and initially we prefer the slightly firmer BUZZBALLS which re made in England as their flight is truer than the normal Japanese balls. We have since progressed via red balls, orange sot andgreen spot balls to the normal yellows.

The company making them work with 23″ rackets so so do we. We have found that the Japanese balls do not survive heavy usage particularly with the longer 25″ and 27″ rackets. For yellow balls we now use 27″ rackets.

We use the ‘orange ball’ court because it’s appropriate for the shorter rackets. Nowadays we use a full size court.  Net height is set at 80cm.

For a video of the indoor version look at Metro, indoor Soundball

I set thus up because I wanted to be able to play at a court I could walk to from home and enjoy peace and quiet. By joining Sussex County Lawn Tennis Club as a member I could enjoy the club facilities at any time. Thank you.

Today we have two visually impaired players and three helpers. Most of us were starting tennis for the first time and nobody could see any of our mistakes.!

Two years on and our effective vision is much better and we are all fitter  and healthier.

Come and join us.

Full review – Gluten Free in Shoreham By Sea, Brighton and Worthing, Sussex,

Full review – Gluten Free in Shoreham By Sea, Brighton, Worthing and Hove, Sussex,

My grandson (‘FG’,6 years old.) has now been diagnosed as a Coeliac, September 2016, so the primary emphasis has moved to include children’s needs, so the whole family is included.

I’m suggesting a virtual journey around our area, visiting restaurants in Italy, France, America, Mexico, Greece, India, Turkey, Bangladesh, Peru,  England, Thailand, Brazil, Spain, Portugal, Japan. Join us and join in the fun.

 

Ice Cream:

Italy, (ice cream was invented by the Romans.) Pizza Hut’s soft ice cream machine is GF. Serve yourself. 15th OCTOBER 2016. Beautiful Italian Ice Cream. FG’s verdict “Ten Yums”

Tom Foolery café, Shoreham High Street – good choice of coffees and some GF cake or pastry plus Marshfield Farm ice cream. Lack of knowledge so only choose Chocolate chip Mint flavour.20th Novemberr 2016. Location.

Macaris sea front Worthing…everything except cookies and cream are Gluten Free. 17th October 2016. Location.

Worthing Lido shop – GF Ice Cream in a tub. Marshfield September 2016. Location.

Worthing, Food Retaurant is very good. Location.

Tosca’s restaurant in Shoreham By Sea – ice cream with or without Chocolate Brownie, a sprig of mint and a chocolate finger! 25th September 2016. Location.

Theatre Royal Brighton provide Beechdean GF Ice Creams.

Brighton Beach Ice cream;   through the tunnel at the end of West Street and first on the right. Huge selection. FG’s verdict on banana and chocolate, three YUMs. August 2016.

Beechdean Ice Creams are all Gluten Free, 25th October 2016

Marshfield Farm ice cream in tubs is all gluten free; four of the scoop tub ones are not,  namely Raspberry Pavlova; Chocolate Fudge Brownie; Gingerbread in Clotted Cream; Cookies and Cream”

 

Cafés/ fast food

 MacDonalds, Shoreham, Holmbush and Worthing – [America. Peru, West Africa.]  Beef bruger or chicken and fries or hash browns with any of the sauces or dips, except sweet and sour plus  Salad. Couple of choices for dessert.  FRIES. FG’s verdict “Four YUMS” Location. Good coffee. 26th November 2016.

KOOKs Gardner Street, Brighton. Just when I needed a Chocolate Brownie and a glass of wine, they delivered. Good range of snacks. 10th October 2016, Location,

Ropetackle Café, Shoreham, GF jacket potatoes, toasted GF sandwiches, cake and coffee. 5th October 2016, . . Location.

Panissa Coffee Shop,  |Southwick Square Café – Excellent Carrot Cake and  cup of tea. 4th October 2016.  Location.

Carats Cafe, Southwick, All-day Breakfast, your selection; eg bacon, eggs, mushrooms, tomatoes, baked beans, and SAUTE potatoes heated in an oven. Also Pipers Crisps (Yellow and blue packets are GF). August 2016. Location.

Brighton Beach Paddling Pool café, under the Arches; GF fruit bar and very good coffee;

Gardner Street Brighton (Komedia) café – toasted sandwich, cake, wine, October 2016. Also two cafés (Manor and the Larder)next door to each other owned by the same people so what one doesn’t have next door does, whether its wine or cake. (This time not so good, had to go to Kooks , two doors along. October 2016).

Dome Vintage Tea Room, Worthing, Toasted ham and cheese sandwich with crisps and salad…. and a glass of wine. Today choose your ingredients GF all day breakfast. Excellent. Location. 17 October 2106.

The Artisan café, Shoreham, chocolate brownie or taosted sandwiches, all-day breakfast, extensive cold salad choices. 17th October 2016. (with a glass of wine.)

The Plaice in the Square, Southwick, GF Fish and Chips, MTW only. They like twenty minutes warning to prepare the batter. Location and phone no.

 

Pubs / Bars

I shall shortly be checking out Wetherspoons as they are back onmy horizon. Their CF menu looks good and then there’s the apple crumble, bring it on. 8th January 2017.

GF Beer: The Cow Shed, Worthing sea front opp. the Pier, has GF Beer. 17th October 2016. Location.

GF Beer: The Evening Star, just down from Brighton Station serves gluten free lager/ beer, OK OK so it’s bottled but at least they have it and you can enjoy it. September 2015.Location.

GF Beer: The Duke of Wellington, Shoreham, serves gluten free lager/ beer, OK OK so it’s bottled but at least they have it and you can enjoy it.  Plus GF ‘Real’ crisps. October 2016. Location.

The Bridge Hotel, Shoreham By Sea – Fish Pie with seasonal vegetables at the Bridge.   Excellent pie and the Bridge has a garden overlooking the River Adur. Lovely staff, limited GF menu. Location.

The Rising Sun, Upper Beeding. It always seems high risk, but the chef checks with you personally and we always work out something that’s good and well priced. Location. , where the Henfield Road comes into Upper Beeding. It’s better for GF than the Kings Head. June 2016.

Wetherspoons (Brighton Marina, George St., Hove and Worthing) – used to be very good because they had CHIPS which these days are gone. They may do a GF Curry but I need to confirm this.

Harvester has given me a mixed view. Near Marlow and the M40 junction they were excellent after a momentary panic. In Brighton it was not a happy experience though the food was indeed GF. Similarly with the Worthing one. So no clear recommendation.

All the Wadsworth’s pubs and restaurants in the South West upto Hampshire and Gloucestershire.

 

Restaurants

Chambers Restaurant, High Street Shoreham, very smart, and the chef knows what he’s doing. Great food, an excellent lunch menu and good wine. Now with a gluten- free menu. January 2017. Location.

Liming, Mexican restaurant in Worthing, extensive GF choice including kids. 7th Jan 20`7. FG awarded Ten YUMs plus a plus five YUMs for the nachos. Ice cream was excellent particularly with the caramel sauce. Location.

India / Bangladesh. The Indian Cottage, High Street, Shoreham, they use gram flour – avoid the nan bread and chappatis, and you can ask for a small portion and also with no or low sugar. Pappadums are made with urlich flour and rice flour. LJ’s verdict “Ten YUMs” 26th October 2016. Location.

Thailand, Thai Street Food, Bath Place, Worthing. The team, particularly the chef knows her business. The soy problem and the noodles. Yellow mild curry was delicious. 24th October 2016. Location. ]A second visit later, was even more popular with everyone. FG Three YUMS, LJ Four YUMS.]

Italy. Tosca’s in Shoreham By Sea – GF garlic bread, Beef Stroganoff (GF version) a great family lunch. Normally GF penne supplied with a wide range of GF sauces. Also very good GF pizzas. with GF pepperoni.Smart restaurant. 14th October 2016. Location.

Italy. Pizza at Pizza Hut, near Churchill Square;, always have extra tomatoes – great for children…and there’s Italian Ice Cream. May 2016. .Location. FG’s verdict – “Pizza 3 Yums, Pizza with tomato, cheese, ham and chicken.Ice cream with chocolate sauce “10 Yums.” (by the way colours of tomato, Mozarello cheese and Basil are the colours of their national flag!)

Bankers Express, Hov – GF Fish and chips, with mushy peas, on Mondays and Tuesdays.  Beautiful piece of cod. FRIES. August 2016. Location.

France. Steak Frites at Cote , Brighton – FRIES. “Straight from France”. C’est magnifique.” Also chicken and fries. Plus apple sorbet with Calvados. August 2015. Location.  Link to main web site to find and book a table anywhere.  I’ve visited one in Birmingham and also the one near Victoria station – just brilliant.

Italy. Carluccio’s, Brighton; – always good and good wine, I usually have GF Pasta or the Goat’s Cheese salad… and there’s a Tesco round the corner to get some chocolate. July 2016. . . Location.

Fish Factory; Worthing, no chips. The food is beautiful. July 2016. Location.

“Food” Worthing, including real burger and real chips. very good  and the ice cream is good too, 5th December 2016. Location.

February 2016. Royal George carvery, Shoreham – every thing except the gravy and cauliflower cheese. Very popular prices, excellent if you’re really hungry! Location,

2015. We also had a superb family meal at the Arun View in Littlehampton, overlooking the River Adur…. with a west facing terrace and a superb meal. Location.

The Toll Gate, Bramber – carvery and cold table, excellent food, and a huge choice of desserts,  (Best of all) knowledgeable staff, Location.

Italy. Zizzi’s, Brighton, location.  Zizzi’s are good whatever town you visit. So looking for a restaurant in a  new place then it’s easier. Link to main site for finding and booking a table anywhere.

Zizzi’s, Cote, Carluchio’s and Cafe Rouge are all great choices. Plus Pizza Hut, Pizza Express and Domino’s are all great.

Crab Shack, Worthing, I’ll keep it simple. I won’t go there again. 30th November 2016

 

AND the new ones

Spain, Aguadulce Brighton.Various GF dishes.

Brazil, Touro, Brighton

Poland, Lavenda, Worthing.

Bangladesh. Mahan Worthing, almost everything OK even the pappadoms, though not the chapatis and naan bread. !7th October 2016.

Greece. Fat Greek Taverna, Worthing.  Proper Greek food should be great.

Fish Factory in Littlehampton.

India. Chaula’s Indian Restaurant Little East Street Brighton. Dosa possibly.

AND if you’re starving:-

Jacket or boiled potatoes with omelette and salad and then you start creating something they can do, but no grated cheese. Remember all ingredients have to be shown on every package even for caterers.

Bounty bars; YorkieBars,

Tesco’s (Holmbush) gluten free section is 36ft long and seven shelves high, lots of choice. Plus Tesco’s own label chocolate 85%. Plus bag of mixed nuts in ‘greengrocery section’ and sultanas in ‘home baking.;

Selected Dates, Quinoa and molasses I get from Infinity Foods.

 

BEWARE:

BAD NEWS: wheat, barley, rye, oars, spelt, semolina, couscous, malt, noodles, (rice noodles are v good) North African cuisine (Couscous)

Mayonnaise. Coleslaw. Mint sauce. Soy sauce. Check them each time.

These are my opinions because company policy can change, chefs can change, ingredients can change  and then there’s the kitchen staff  and their utensils. So you’ll be pleased to know that I am extremely sensitive to gluten and that I’d come with you t any of these.

Bon appetite.

Cliff

LUTEIN – The Macular Society’s Comments

These are exciting times for research.  Promising new drugs are in development, important genetic discoveries are being made and we’ve seen the first safety trials of stem cells in the human eye.

 

A large study, the Age-Related Eye Disease Study 2 (AREDS 2) suggests that a high intake of lutein can reduce the risk of developing advanced AMD. The Aston researchers concluded: “For an informed population, many AMD participants were under-consuming nutrients considered to be useful for their condition.  Participants without AMD were more likely to reach recommended daily allowance values”.

[ Publsher’s Comment ; The AREDs 1 study is in fact more important.]

 

Lutein and zeaxanthin, key constituents of macular pigment, have been found in high levels in the retinal rods.  This suggests that macular pigment could play a significant role in keeping the retinal rods healthy and maintaining how well our eyes are able to adapt to the dark

 

Consider a nutritional supplement if you cannot be sure of getting high levels of antioxidants in your diet.  There is some evidence that a specific formula of antioxidants and zinc tested in the second Age-Related Eye Disease trial  (AREDS 2) can slow down the progression of AMD in some groups of people.  No supplement has been shown to cure AMD.  You should always talk to your ophthalmologist or optometrist before taking supplements, as they can interact with prescriptive medications.

 

The Macular Society has information on all aspects of living with macular conditions.  We also have local support groups and a training programme to help people learn to use their peripheral vision more effectively (called “skills for seeing”).  We have a professional, confidential telephone counselling service, a befriending service and a team of “buddies” who can provide reassurance on injections and visual hallucinations caused by Charles Bonnet Syndrome

 

Shoreham Soundball Tennis started

Shoreham Soundball Tennis started on 15th June 2015 with our first coaching session.
The fabulous benefits of tackling Sound Tennis include:
Sharing the improvements and the frustration with others

Having a beer afterwards

Making new friends, all like-minded people

Joining in the fun of  ‘away’ matches

Getting out of the house frequently
Trying something NEW

Improving Fitness

Improving Visual Acuity – stretching the brain

Losing weight

Helping others

 

Learning / relearning old skills – muscle memory

Opening yourself to further challenges

Sheer Joie de Vivre, Slf-confidence, and “I CAN”
So what are you waiting for?

AND It’s easy to play “Sound Tennis” if you’ve been a player no matter your standard. Besides nobody can see your goofs. (We’ve all got the same problem.) You’ll soon get into the swing of it.

Go online for ‘Sound Tennis Sussex’ on YouTube and you can see(!) how easy it is(?) Our oldest player is over ninety so there’s no excuse. In the video the first chapter shows B1s, so see them compete…. it’s almost unbelievable. (To keep it fair, they all wear eye-masks, no sneaking allowed.)

There are groups of Sound Tennis players all over the country enjoying themselves, so get out and find them. If you can’t, then email me through the “Contact Us” form and we”ll see how we can help you sort it out.

We also joined in the National Championships in Newcastle in May and are looking forward to more get-togethers including overseas activities.

Love 15

Cliff

 

 Shoreham Soundball Tennis started on 15th June 2015 with our first coaching session.

TaRRa

Cliff

BTW Carers can play as well, so everyone can join in the fun.

Gluten Free Pizzas, Sussex, Shotreham By Sea

Gluten Free Pizzas, Sussex, Shotreham By Sea
What a break-through. Suddenly we have Gluten Free Pizzas

Personally I’ll give top marks to PizzaHut and Prezzo, though regretably neither of them are represented in Shoreham by Sea. Locally we have Domino’s, as atake-away, or Brio’s near the station.

We had a predentation by a manager of Domino’s and she reommended asking for extra tomato sauce. GREAT.

…………………….

If this article has been of help to you, I’d love you to say thanks by making a small donation to JustGiving for the Macular Society. All the monies route directly to the Macular Society, particularly for research into a cure.
Thank you very much,
Cliff.

A quick Review of Gluten Free Living, Dec 2012

A quick Review of Gluten Free Living, Dec 2012

Getting the berst out of life with all that’s wonderful in gluten free:

Anthony Worrall-Thompson Gravy graules
“Genius” sliced Bread, for sandwiches
Balsamic vinegar to go with any salad

Jacket and new potatoes
Wetherspoon’s Pubs particularly for their Apple Crumble with custard
Cafe Rouge restaurants, for Steak Frites, Moules Mariniere

Italian Restaurants (lfor GF Pasta)
Quality Indian Restaurants using Gram flour
MacDonalds burger chain (everything including the French Fries are clear, just ask for no bun) and

Heinz Tomato Ketchup, Helman’s Mayonnaise; Dijon Whole Grain Mustard; Knorr Swiss; Patak’s and Sharwood’s Curry pastes and pappadums,
Querizo and continental saucisson;

Mrs Crinble’s coconut cakes
“After Eights”
Cadbury’s Roses and finally

A glass of red wine
===

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