Open letter to Macular Society re Lutein v AMD

 

An Open Letter to the Macular Society about Lutein v AMD

 

Looking at my local Macular support group only two out of twelve members had heard of Lutein  and both used  it successfully. The others, ten people had never heard of it.

 

Whilst the Macular Society on their web site support the benefits of Lutein, their quote is buried deep in the turgid detail of a report by scientists. I quote:

 

“Research supports the theory that high macular pigment levels may reduce your risk of AMD or its progression.Macular pigment can be increased by taking supplements with lutein or zeaxanthin or by changing your diet to include more of them.” Macular Society website.

 

What they don’t say is that 50% of users found that their eyes stopped deteriorating. They do not state that there is no scientific or statistical support for these same benefits being achieved by changing your diet on its own.

It is my contention that our Macular Society is letting our members down and allowing thousands of members to suffer continuing degradation of their sight unnecessarily.

If I was a cynical person I might think that this situation has occurred because of the financial support given to the Macular Society by the suppliers of assistive technologies. They have a strategic need to find more people with deteriorating eyesight. [They sponsor our annual conference and advertise in our magazine.] But may be that’s unfair.

 

THIS NEEDS TO CHANGE.

 

I Propose a new policy for the Macular Society:

 

Draft 2 for Lutein Policy for the Macular Society to consider.

(28th september 2014)

 

“The Facts about Lutein

 

It is a fact that our eyes have Lutein in the macula.

 

The AREDS (Age related Eye Disease Study) found that people suffering from AMD got relief from further deterioration by taking supplementary Lutein (with Zeaxanthin) in doses ranging from 10 to 30 mg per day. There were no no side-effects observed.

There is also empirical evidence and some early studies showing that Cataracts cease growing when using the Lutein supplement.

There is increasing professional support of the results of using these supplements and some eye professionals are starting to prescribe them.

The Macular Society is pleased to see these developments and will conduct its own study of our members to try to confirm, or otherwise, the effects of the use of these supplements. In the meantime it is upto each person to find out as much as they can and take their own decision. We will conduct our own study and then we hope to endorse its use fully.

 

The Macular Society

Dated:…….

 

 

Just Giving – Cliff’s Blind Walk

Just Giving For the macula Society

I’m asking you to give to the macula Society because they help people come to terms with the aprtial or complete loss of their sight, they provide local support groups to work with them and to help them.

The society staff are supplemented by fourteen hundred volunteers.

In my personal opinion their most important task is sponsoring research into potential cures.

It appears that the best probabaility lies with stem cell research. There are several teams working on the problem One difficulty they are tackling is inserting the new cells in the right place and in doing it at a cost people can afford, whilst others are trying to grow the new cells in quantity.

Just Giving for the Macula Society

I couldn’t ask you to sponsor my recent climbing in Snowdonia because it could have meant putting people at risk so I ask you to sponsor me on a simple six mile walk but wearing the dreadful simulation glasses. I have spare ones if you want to join me!

Just Giving For the macula Society

The walk is planned for 10.30am on Saturday 19th october 2013 starting at Carats Cafe east of Shoreham Harbour entrance proceeding along the seafront along past Hove lagoon to Brighton Pier and then along Marine Parade to finish at Brighton Eye Hospital.

With your supprot we can solve this problem and find a cure.

Please help, thank you.
Just Giving

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